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WELCOME to PHACE

Syndrome Community's 

2023 Awareness Week!

 

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To participate, email us two photos of you/your child to our Show Your PHACE campaign.

All individuals represented have PHACE Syndrome, which has no known cause or means of prevention. Our organization seeks a multitude of answers and quality of life solutions for all those affected. 

2023 AWARENESS WEEK POSTER

Want to Help?

You are so amazing! Here are three ways to make a difference:

 

The PSC is managed mostly through volunteers - and the overwhelming majority of our them are parents of a child with PHACE that also juggle care of their child and providing for their families. We are always seeking more helpers to offer additional bandwidth and bring new areas of expertise. 

 

 Please know your generosity is appreciated from the bottom of our hearts. 

 

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The phace syndrome community is dedicated to supporting

families and individuals with a phace syndrome diagnosis. 

join today to receive updates on research, events, and information about phace syndrome. 

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We seek to maximize the use of every single cent for those born with PHACE; Your support is NEEDED. 

The phace syndrome community is dedicated to serving and supporting all those affected with phace syndrome and those working to learn more through research.

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The PHACE syndrome registry at stanford is supported in part by the phace syndrome community. We encourage all families with a phace syndrome diagnosis to register for this very important research platform.

PHACE AWARENESS WEEK EVENTS
Monday, March 20, 2023
WEAR
RED and Show your PHACE Syndrome support and wear read. Post your picture on social meida using #phacesyndrome. 
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Wednesday, March 22, 2023 @8:00pm eastern time.
Join Dr. Ilona Frieden via Zoom, as she shares information about the recent 10 and over research study.

Register for the meeting here.
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Tuesday, March 28, 2023 @8:00pm eastern time.
Learn more about the National Conference and the benefit of attending the 2023 event in San Mateo, CA.


Register for the meeting here.

 
ORDER a T-SHIRT:

Show your support with PHACE Syndrome Community merch. Click here to order yours today!

Read the 2023 PHACE Facts

Follow the PSC on Social Media
Follow, Like, Share and Subscribe to the PHACE Syndrome Community's social platforms.


Remember to use #phacesyndrome and #phace ​when posting about PHACE Awareness Week

Facebook
Instagram
Twitter
YouTube

 

 

 

 

 

 

 

Add PHACE Awareness logos to your social media 
​Replace your Facebook Cover with the PSC Facebook Cover​
Replace your profile with the PHACE Syndrome logo to your Facebook or Instagram profile


Click here to receive the logos.

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Our mission is to raise awareness about PHACE, grow our community, support new research and share advancements in treatment for those affected by this syndrome.

We Cannot Do This Without You! 

 

Your generosity helps us reach physicians who don't know about PHACE, connect people born with PHACE with the best care and treatment, and provides the funding to further research so that someday we can find the cause, solutions to improve quality of life and answers to so many questions our community has.

PHACE Syndrome Community launched its first PHACE Awareness Week in March 2015, and more than 90 families participated. Today, our community has grown to over 900 members!

 

LEARN MORE!

Check out PHACE Syndrome Community

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MARCH 17-24, 2024

PHACE AWARENESS WEEK

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