SHOW YOUR
PHACE!
Email us two photos to add you or your child to our PHACE A Special Case campaign during
PHACE Syndrome Awareness Week.
All featured individuals have PHACE Syndrome.
Note about photos in the upper montage...many of those pictures were taken by Positive Exposure Founder Rick Guidotti. Click here for a photo gallery of his images from our 2014 conference.
pHACE Syndrome awareness posters
Three Ways to Help
3. REGISTER
If you or your child has PHACE
Syndrome, we can't stress enough
the importance of joining the registry.
Note: you do NOT have to give DNA
samples if you don't wish.
Thank you!
Fresh PHACE Facts:
​
​Check back daily during the week of Sunday, March 17 through Sunday, March 24 for new PHACE facts each day!
​
Wear REd March 20
​
Show your support by wearing red on Wednesday, March 20th in honor of
PHACE Syndrome Awareness week.
Post pictures of you, your family or colleagues (or all!) wearing red with #PHACESyndromeAwareness
​
Order a t-shirt!
​
Show your support with a PHACE Awareness T-Shirt. Click here to order yours today!
LEARN MORE!​
webinars
Click below to watch
Dr Dawn Siegel's informative webinar:
Investigations into the causes of PHACE Syndrome
Click below to watch
Dr. Beth Drolet's informative webinar:
The outcome of PHACE Syndrome
The PHACE Syndrome Community launched the very first PHACE Awareness Week in March 2015!
Over 90 families participated. Today, our community has grown to over 500 members!
​
Through your help, we can raise awareness about PHACE Syndrome
so that more children get the best treatment,
more families find support through our community,
and someday through more research, we will find the cause of PHACE!
