AWARENESS WEEK POSTERS
WELCOME to PHACE
2021 Awareness Week!
To participate, email us two photos of you/your child to our Show Your PHACE campaign.
All individuals represented have PHACE Syndrome, which has no known cause or means of prevention. Our organization seeks a multitude of answers and quality of life solutions for all those affected.
Want to Help?
You are so amazing! Here are three ways to make a difference:
The PSC is managed mostly through volunteers - and the overwhelming majority of our them are parents of a child with PHACE that also juggle care of their child and providing for their families. We are always seeking more helpers to offer additional bandwidth and bring new areas of expertise.
Please know your generosity is appreciated from the bottom of our hearts.
Check back daily during the week of Sunday, March 21 through Sunday, March 28 for new PHACE facts each day!
Click the video below to watch:
PHACE Registry & Research by Dr. Siegel
LATEST RESEARCH PAPERS
Our mission is to raise awareness about PHACE, grow our community, support new research and share advancements in treatment for those affected by this syndrome.
We Cannot Do This Without You!
Your generosity helps us reach physicians who don't know about PHACE, connect people born with PHACE with the best care and treatment, and provides the funding to further research so that someday we can find the cause, solutions to improve quality of life and answers to so many questions our community has.