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WELCOME to

PHACE Syndrome Community's 

2024 Awareness Week!

 

What to do with the #ShowYourPHACE

Social media Frame and Banner

1. Post your personalized frame on social media

2. Add you personalized banner to your Facebook page.

3. Ask your friends and family to share your post

4. Email your frame to your friends and family and ask them to support the PSC

 

What to do with the #ShowYourPHACE Reel

1. Post your personalized reel on social media

2. Ask your friends and family to share your reel

Remember to use #showyourphace

 

Follow the PSC on Social Media
Follow, Like, Share and Subscribe to the PHACE Syndrome Community's social platforms.


Remember to use #phacesyndrome and #phace ​when posting about PHACE Awareness Week

Facebook
Instagram
Twitter
YouTube

 

During PHACE Awareness Week, add PHACE Awareness logos to your social media 
​Replace your Facebook Cover with your or the PSC Facebook Cover​
Replace your profile with the PHACE Syndrome logo to your Facebook or Instagram profile

Special Events

All special events require registration 

Click on the event Date to register

Wednesday, March 20 @8:00 pm eastern time

Join a discussion with some of the authors of the recently published

"10 and Over Study"

 

Thursday, March 21 @8:00 pm eastern time

LUMBAR discussion with Dr. Denise Metry

 

 

Friday, March 22 @8:00 pm eastern time

Virtual get together and scavenger hunt for kids (ages 7-11)

 

Supporting the PSC is easy! Make a donation, organize a fundraiser, or create a Facebook fundraiser. 

Keep informed about the PSC's events. current research opportunities and other information of importance.

Research is crucial in understanding more about PHACE syndrome. Join the registry and help advance research. 

Join our virtual meetings, facebook group, and other events to connect with other families. 

MARCH 17-24, 2024

PHACE AWARENESS WEEK

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