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WELCOME to the

2024 Awareness Week

March 17-24, 2024

Join us in raising awareness of PHACE Syndrome and supporting families effected by this rare condition. 

2024 Awareness Week

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Supporting the PSC is easy! Make a donation, organize a fundraiser, or create a Facebook fundraiser. 

Keep informed about the PSC's events. current research opportunities and other information of importance.

Research is crucial in understanding more about PHACE syndrome. Join the registry and help advance research. 

Join our virtual meetings, facebook group, and other events to connect with other families. 

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