Syndrome Community's 

2021 Awareness Week!



To participate, email us two photos of you/your child to our Show Your PHACE campaign.

All individuals represented have PHACE Syndrome, which has no known cause or means of prevention. Our organization seeks a multitude of answers and quality of life solutions for all those affected. 


Want to Help?

You are so amazing! Here are three ways to make a difference:


The PSC is managed mostly through volunteers - and the overwhelming majority of our them are parents of a child with PHACE that also juggle care of their child and providing for their families. We are always seeking more helpers to offer additional bandwidth and bring new areas of expertise. 


 Please know your generosity is appreciated from the bottom of our hearts. 



We operate with a volunteer board of directors, along with our community program manager. We seek to maximize the use of every single cent for those born with PHACE. Your support is NEEDED.



Become a member and join the PHACE Syndrome Community today. Every member and piece of information makes us that much stronger.  Let's face PHACE TOGETHER.


If you or your child has PHACE Syndrome, we can't stress enough the importance of joining the registry. It is a constant source of vital information - and the key way research HAPPENS.  

PHACE Facts:

​Check back daily during the week of Sunday, March 21 through Sunday, March 28 for new PHACE facts each day!

Join Dr. Dawn Siegel for a Zoom about Research. 
March 21, 2022 @8:30 pm EDT

Register here for meeting access. 

PHACE Syndrome Community launched its first PHACE Awareness Week in March 2015, and more than 90 families participated. Today, our community has grown to over 700 members! 

ORDER a PSC Merchandise:

Show your support with a PHACE Syndrome Merch. Click here to order yours today!

PSC Merch.jpg

Thank you for showing your support by wearing red! 


Our mission is to raise awareness about PHACE, grow our community, support new research and share advancements in treatment for those affected by this syndrome.

We Cannot Do This Without You! 


Your generosity helps us reach physicians who don't know about PHACE, connect people born with PHACE with the best care and treatment, and provides the funding to further research so that someday we can find the cause, solutions to improve quality of life and answers to so many questions our community has.